FURA Fundation
FUNDATIÓN UNICO RAFAEL ARRUNDELL "FURA" Is a path within the complex situation that lives in the human environment in which children develop chromosomal disorders that generate various types of disabilities. In the search to achieve a better quality of life for them and their parents we decided to promote through this initiative spaces for training, training in the field of Rare Diseases, Autism or other special needs, from a human, psychological, educational dimension , cultural, sports, recreational, tourist, musical and economic, trying to provide all the possible tools. In carrying out this task we add good wills and economic contributions to achieve our work goals.

Mission:

Establish people with reduced mobility or disability a process of integration without exclusion and are incorporated in all areas of society

View:

Be a movement that becomes a transforming agent that integrates all sectors of society in the effort to provide support to people with rare diseases, autism and other special needs, becoming a reference center that has a database to serve as a link between patients and research centers worldwide in an attempt to find the answers to the various pathologies they present by developing consolidation and promotion activities in order to achieve integration and a better quality of life for these individuals.








Specific objectives:

  • Promote recreational areas that people with rare diseases, Autism or other special needs by providing facilities for daily life through various services, doing a network with other organizations in the community.
  • Seek medical attention, as a starting point for the welfare of people with Rare Diseases, Autism or other special needs.
  •   Provide psychological assistance and training around autism and rare diseases, to families (parents, siblings, grandparents, uncles).
  • Train professionals in the field of health and education in specific work with children and people with Rare Diseases, Autism or other special needs.
  • Disseminate the characteristics and treatment of the problem through lectures, workshops, bibliographic material and information.
  • Provide training and constant information to both professionals and family members.